Friday, October 24, 2008

Spica Free

I posted about today on our family blog.

As of today Sophie Wei is freed from her Spica Cast!

Thursday, October 23, 2008

Bubbles and One Night Left

Sophie Wei slept the best she has ever for me. When I went into her room to sleep on Simone's bed I quietly layed down and opened my book, turned on my flashlight and I hear very softley, "Mommy..........MOMMY." I say to her, "Sophie, Mommy's hear time to go to sleep." Then not another peep until 3:30 am!! SIX HOURS of her sleeping and tossing and turning, without needing me to hold her. PROGRESS. From 3:30 on I changed her diaper twice and layed her in bed with me while she slept on my arm. If I moved my arm she fussed so I tried not to move which caused me to have a few kinks but I will do any thing for sleep :O) By 4:45 am she was saying, "GO" to me which means she is finished sleeping so I just get up and go down stairs with her for breakfast and another ELMO DVD.

This is her last night tonight in her SPICA cast. We are all very excited and have been showing her photos from my friend Robbies blog so she can see what will happen tomorrow when the doctor takes her cast off. I know these photos are helping Simone and she can't wait!
These photos are from today. I have been picking up my camera more these last few days, making sure I have plenty of pictures with Sophie Wei in her Spica Cast along with videos.

Our friends Lisa, Ally and Abi brought by some Halloween bubbles, a card and a worm. I let Sophie Wei go for the bubbles, first time since before her cast was on. She loved it and I did not care because today was the last day in the cast!! It also has a very stinky smell to it so maybe this might spruse it up a bit. Thanks for the fun girls.
Oh the worm....Lisa also brought a slimmy, long fake worm for the girls. When Rick pulled into the drive way Simone had her back to him. Just as she saw him coming she held up her worm to show him and he jumped so high because he thought it was a snake!! I felt so bad because I know how he is about snakes but to him it was so real looking and dark and the way it moved as Simone turned around he thought it was a snake. Sorry Daddy.....
Sophie Wei had a blast...What a different girl this afternoon!!

I will NEVER forget this cast and all it stands for! I can not wait for Sophie Wei's next step and pray her body is healing and will continue to heal!
While rolling around in the grass Simone rolled onto the sidewalk and hurt her toe. She wanted me to take a photo of it. Ouch!
I can't wait for tomorrow. I am so excited and nervous at the same time. I know we have a bit to go with recovery but it seems like it will be better than what we have been through already??? I have so many questions for tomorrow.......How did the Acetabulum form, how does the femur head look, how does the plates and screws look in the femur, when do they come out and how, weight baring instructions, skin recovery and back to her club feet recovery (when do we start the brace again. I am so worried that she will regress with this due not having the bar on for so long now and the fact we had to wait a month for it to come in after we came home from China.)......That's just a few of my questions for now. I have to go over our list and get ready for tomorrow. I will try to post tomorrow to let everyone know how it went.

I also can't wait to order our copies of the xrays!

Wednesday, October 22, 2008

Sponge Bath

I learned how to give Sophie Wei a sponge bath from my friend Robbie....Sophie Wei does not like it too much but that is nothing a big sister and gum can do to help.

It was nice to have my Mom here for two days to help us. It is such a nice feeling to have her hear!!

Sophie Wei was receiving comfort from Simone.
Sophie Wei happy and smelling good after her sponge bath. Simone making bracelets.

Simone not very happy about me taking these photos.

Sophie Wei was all about me taking pictures of her because Simone was not. Then she wanted out of her stroller and wanted me to hold her.

Two Nights and One Point Five Days Left

Tuesday, October 21, 2008

Three Days Left

Three Days Left!!!!!!!!!!

This will be a very happy drive to the doctors on Friday!!
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Saturday, October 18, 2008


We are all celebrating that we only have six days left in the Spica Cast!!

We see the light at the end of the tunnel and sleep for us all.

Sophie Wei has been sleeping better the last few nights. She still is up a few times. For example, last night Rick said that she calls out to him, "Daddy" and he replies, "go to sleep" and she does. I just wish it worked for me that way :O)

We both think the antibiotics are helping her a bit so that is a blessing. It is my turn tonight so we will see how it goes.....only 6 more nights with the spica cast on!!!!

Rick and both feel like we are almost "half way there". We are wondering if it will take her the "projected" time for her to start walking and how hard will this next section be??

Sophie Wei we are so proud of you for how far you have come and we pray your body and spirit is healing and can get some solid rest soon. We love you so much.

Simone we are so proud of you for being such a big help these last few weeks and understanding that why Sophie Wei needs us all to help her. You are such a good little "doctor".

Here is a picture of Sophie Wei with her hair a little messed up :O)

Treasures from Friends at School

Over a week ago my friends at the Elementary School where I teach put together two big baskets for us!!! They also gifted us money so we could purchase more poise pads, wet wipes and food. We are extremely grateful for the help and feel so blessed to have so many friends that are helping us through this time. So far we have gone through over 200 Poise Pads and they are so expensive.

There are so many things in baskets to keep us busy while Sophie Wei is in her Spica Cast. We have things that are borrowed so they are labeled so we can return them after we are finished and things that have been gifted to us. WHAT A GREAT IDEA because Sophie Wei's attention span is so short that having new things to look or play with has been great.

Here is a list of some of the things that are in the basket:
Books, movies, puzzles, crafts, stickers, games, manipulative activities, sorting objects, shapes, foam sheets, dvds, books on tapes, stuffed animal, silly jumping dog, phonics books.

They have been a blessing to our family. I LOVE MY FRIENDS!

I was also so blessed to have my friend Andrea M. go to Costco to help us with our shopping. They same day that she came over we had Rachel, Lauren and Jake over in the morning and Rachel even did my dishes for me :O)

After Rachel, Lauren and Jake left and while we were still visiting with
Andrea, Ellie and Easton, Simone had a big melt down/crying fit. She had just reached her melting point and just needed me to hold her for a bit. Sophie Wei left Andrea hold her which she normally does not let many other people hold her so I felt so relieved so I could help Simone. I think I would of just cried if I was home by myself as Simone was in that bad of a mood. I was able to hold Simone for a while and then put a movie in for her. This was good because Simone has not really had the attention that she has needed in the last few weeks so we have been more intentional with making sure she has time with us and have been taking her out for one on one time.

We are so blessed with such good friends!!

Turtle Cookie Bouquet

We received this surprise on our front porch when we came home from our morning walk.....It was a Turtle Cookie Bouquet from Cami and Chris!!!!!!!!!!!

It was so very cute and these photos do not do them justice. What was so nice about this cookie company is they also called us and left a message to make sure we found them on our front porch.

They were so yummy, we polished them off by the second day and the girls loved the idea of the cookies looking so "pretty in the air".

Thanks Cami and Chris, you made our day!!!!!!!!!!!!!

Below is a photo of the jeweled bracelet that Simone made in the hospital. She loves all jewelry but has been wearing this one non stop. She says it reminds her of Sophie Wei's surgery. I am so glad that we went down to the craft/art room and made these! Just another great activity that the hospital does to help people. They have an art program that continues for all children who have been at the hospital. We plan on going back soon for a session. I think it would do us all good to go back and say thanks to the staff and nurses. Hmmmm....maybe we will have to bring some cookies :O)

Wednesday, October 08, 2008

Spica Car Seat

Here is the car seat that we received on loan from the hospital.

Marathon and a Before the surgery we had read that one of our car seats may of worked. We have a BritaxBritax Regent but due to the position that Sophie Wei she is positioned in her cast we could not use them. We are very thankful for the hospital letting us borrow the car seat as some days it is the only place she will nap.......on the way to dropping Simone off at preschool.


This stroller has been a great help for us because we can go for walk or Sophie Wei can sit in here in the house while we try to get things accomplished.

We put a pillow behind her back since she sits at an angle.
This helps make it more comfortable for her.

Today I found a very cool link for Ivy Rose Spica Chairs.
If anyone is looking for a table for their child in a spica chair they need to see this site...
I wish we knew about it before Sophie Wei's surgery.

Tuesday, October 07, 2008

Sophie Wei Sleeps

sophie wei only was up and fussed 3 times last night!!!!!!!!!!!!!!!!!!!!

Right after Rick put her to bed and after I gave Simone a bath and put her to bed Sophi Wei fussed but I thought Rick was in there so I did not go in. She fussed for about 5 minutes and then stopped, I went down stairs and saw Rick...I told him what happened, we lucked out.

Rick said he changed her diaper around once around 10 and then he held her again at 3:30, That's IT!!!

What a blessing!!!!

It only took two days shy of 4 weeks!!!

Monday, October 06, 2008

Photo Space

Ahh, I guess that I have reached my upload limit for photos through Google/blogger......I have uploaded around 3,500 photos and at my high resolution I guess that is as much as I can upload.

So I added more room which was $$$$ but not back for all of the blogging that I have done over the last few years......I will now have 10x the storage which I will not need but I still need to do blurb books so I can't delete any more photos to make room. I guess i have to wait for 24 hours for it to go through.....I will try back when it goes through or when it is my night off......So see you in two nights....I have some touching photos from surgery that I am finally ready to post.

So if anyone has this problem when uploading that is what is going on.

So Close

So Close

God’s presence can be a hidden presence,
Not because God chooses to withdraw,
But because we fail to see God who is so near.

There are many reasons for our failure to see.

We are concerned about future projects and fail to see present blessings.

We may also be looking for the wrong indicators.
We may be looking for peace when God’s presence is in the turmoil.

We may be looking for resolution when hope lies in the non-fulfillment
of our present expectations.

We may be wishing for answers when God’s goodness is manifest in further questions.

God is frequently closer than we think.

We need, however, to develop a new confidence that
God inhabits our despair as well as our praises.

From: Day to Journey with Henri Nouwen by Charles Ringma

I received the above email today from my friend Nadine! She found this today on another blog. It could of not came at a better time because this is what I have been struggling with. It also reminds me to continue to pray about what is going great because there are so many things we have to be thankful for. I miss you Nadine and can't wait to see you....this summer??!!!??!

Saturday, October 04, 2008

Night Time

Night Time continues to be so very hard. Last night I was up with her all night. I did get in a few "cat" naps for a few minutes here or there but I held her most or walked the room back and forth with her in my arms. I keep thinking to myself, I wish I could say things are getting better but they are not. Just when we say out loud that they are we are reminded of our situation.

Sophie Wei has also been getting bloody noses so we purchased a humidifier to see if that will help. If it continues we will go see our pediatrician just to rule out the ibuprofen that she had been taking for three weeks.

20 Days left.

On a lighter note the girls have made me smile. Yesterday when I was doing the laundry I left the girls on their bedroom floor between their beds and told them I would be right back. I could hear them laughing from the laundry room witch is just down the hall. All of a sudden I hear nothing....I think, hum, what are they doing? I go into their room and I do not see them. I think to myself, where could they go, Sophie Wei can not walk and Simone could not carry her????? Then after a few moments of silence I hear them quietly snickering......It is coming from underneath Simone's Bed!! They were under there against the wall!! I asked Simone how did Sophie Wei make it all the way under there?? Simone said, "moved here". I just laughed, some things you just do not need to know.

These moments...miss them...want them back......

While leaving the house we now take turns on who's turn it is to close the garage door. Sophie Wei closes it and Simone opens it when we return home. Well the other day Simone started to fake cry (yes she does a lot of this lately) and Sophie Wei hands her the garage door opener. Simone closes the door and smiles, Sophie Wei then cries because she just figured out what she did. They truly know what makes each other tick.

Wednesday, October 01, 2008

Bring the Rain Bring Me Peace

Just two photos of Sophie Wei from her hospital stay....

Reminding myself that we are making progress and to be thankful for that.

Small steps.

22 Down, 22 to go!

Every day together is a blessing.

"Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."
Philippians 4:6-7

Music motivates, inspires and moves me.

Going through my life journey I can think of certain songs that remind me of that time.

For example,

Thunderstruck By AC/DC, Playing With the Boys by Kenny Loggins/Top Gun = Senior Year Volleyball Warm Ups = competition, fun, spikes, blocks, Wendy my best partner/challenger, floater serves, homecoming soon!!

So What by Pink = New Attitude = Sophie Wei's recovery (this deserves it's own post at a later date.)

Here is another one of them that has touched me right now during Sophie Wei's recovery, Bring the Rain! I learned about this song from this web site: Bring the Rain. I have been reading for many months now, can't remember exactly when?? I highly recommend it.

Bring the Rain - Mercy Me
I can count a million times
People asking me how I
Can praise You with all that
I've gone through
The question just amazes me
Can circumstances possibly
Change who I forever am in You

Maybe since my life was changed
Long before these rainy days
It's never really ever crossed my mind
To turn my back on you, oh Lord
My only shelter from the storm
But instead I draw closer through these times
So I pray

Bring me joy, bring me peace
Bring the chance to be free
Bring me anything that brings
You glory And I know there'll
be days When this life brings me pain
But if that's what it takes to
praise You Jesus, bring the rain

I am yours regardless of the clouds that may
loom above because you are much greater than
my pain you who made a way for me suffering
your destiny so tell me whats a little rain

[1st Chorus]

Holy, holy, holy
Holy, holy, holy
is the lord God almighty
is the lord God almighty
I'm forever singing

[2nd Chorus 2x]

everybody singing
Holy holy holy
you are holy
you are holy

Today we also received a suprise visit from Becca, Emma and Sara.

What a nice time to spend before bed and help pass the cranky time :O)

Thanks, we are glad you guys Just DO IT!